.

.
.

Monday, September 10, 2012

Global Genes Project


How do people make it through life without a sister?
~ Sara Corpening

THANKS for all the inspirational photos you are sending in for our upcoming Tribute Gala on Sept. 27. We need more!

Meet sisters Cali and Ryann -- they have an undiagnosed rare genetic disease that prevents them from walking without walkers, talking and taking care of themselves. After dozens of tests, doctors are searching
for what is causing Cali and Ryann's neuro condition. Despite their challenges, these sisters are true fighters!!!

If you have an amazing photo to share for our Gala, send to Chris Hempel: chris@hempelfamily.com. Chris is a GGP volunteer and she is collecting photos for this incredible photo display. Photos must be 2MB or larger, professional quality if possible, plain pics are fine without Hope slogan -- adults, boys, girls -- send them in people! ;-)

Photo: courtesy Global Genes Project.


Meet sisters Cali and Ryann -- they have an undiagnosed rare genetic disease that prevents them from walking without walkers, talking and taking care of themselves. After dozens of tests, doctors are searching
for what is causing Cali and Ryann's neuro condition. Despite their challenges, these sisters are true fighters!!!

Global Genes Project

About

Join the Hope movement! 1 in 10 people have rare & genetic diseases. Unite 1 Million people who support rare & genetic disease awareness. 7,000 different rare diseases exist - 95% have no treatments. Support 30 million Americans and 350 million globally!
Mission
Global Genes Project’s primary mission is to increase rare disease and genetic awareness worldwide and empower a vibrant rare disease community. The organization works to increase public and physician education, builds community through social media and is working to fund innovative ways to increase rare disease research.
Company Overview
The Global Genes Project is the leading global rare and genetic disease patient advocacy organization. Global Genes is building a worldwide rare disease and genetic awareness movement designed around a denim jeans theme and a Genes Ribbon™, which like the pink ribbon for Breast Cancer, has become the unifying symbol of hope for millions touched by rare diseases. 

The organization is operated and managed by the R.A.R.E. Project (Rare disease, Advocacy, Research, Education).


Contact Info

1 comment:

eileeninmd said...

I feel so terrible for these children. I do wish them all the best and I hope they have whatever help they need. I will go now and check out the facebook link.