Monday, February 29, 2016

Rare Disease Day and it's ok to cry

When I wrote my book, Diary of a bereaved mother, it was to help new 

bereaved mothers and to help myself. Television New Zealand asked me 

if I wanted to help them do a documentary. It was to help other 

bereaved mothers.

It was very hard to do the documentary.

Today is is world rare disease day.



The TV Program is available in New Zealand only.


The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.

Rare Disease Day

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