tag:blogger.com,1999:blog-8706566878384047279.post1885073444031810290..comments2023-11-02T00:57:03.752-07:00Comments on my thoughts and photos: ABC Wednesday: Y for Yucca tall flower stalkAnn, Chen Jie Xue 陈洁雪http://www.blogger.com/profile/04399207312968010460noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-8706566878384047279.post-8525597091089068002010-07-07T18:12:09.498-07:002010-07-07T18:12:09.498-07:00Thank you for showing an interest in Campomelic Sy...Thank you for showing an interest in Campomelic Synddrome. I had not written about this, though I have linked to the group a couple of times when I wrote about my son Andrew.<br /><br />Campomelic Displasia is a horrible, horrible syndrome. It is very very rare. Many do not survive. If they do, they require long-term medical intervention. I honour the survivors and their parents.<br /><br />EXPECTATIONS: Most Infants with this disorder die, apparently secondary to respiratory insufficiency. Various factors contribute to those risks. (SEE BELOW) Many die in the first days of life, some over the course of the first year. Few of those who survive beyond the first year are free of severe sequelae.<br /><br /> Natural History by Dr. Pauli<br /><br />http://health.groups.yahoo.com/group/campomelicfamilies/files/Ann, Chen Jie Xue 陈洁雪https://www.blogger.com/profile/04399207312968010460noreply@blogger.comtag:blogger.com,1999:blog-8706566878384047279.post-19325450153836505602010-07-07T17:14:45.294-07:002010-07-07T17:14:45.294-07:00Good! you see it the positive way. When I see my ...Good! you see it the positive way. When I see my Yucca plant died, after all the fanfare, I was quite sad.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8706566878384047279.post-75349831893472015812010-07-07T17:14:08.231-07:002010-07-07T17:14:08.231-07:00heheheeh,
That show how great we mothers are. So...heheheeh,<br /><br /><br />That show how great we mothers are. So much sacrifices and suffering we go through. Shi San Jhi Yu Ma ma How.<br />the Chinese children's song: Mum is the best in the whole wide world.<br /><br />AnnAnn, Chen Jie Xue 陈洁雪https://www.blogger.com/profile/04399207312968010460noreply@blogger.comtag:blogger.com,1999:blog-8706566878384047279.post-88481413304608580332010-07-07T17:12:55.516-07:002010-07-07T17:12:55.516-07:00Hi Ann,
The Yucca tree may look like a majestic pl...Hi Ann,<br />The Yucca tree may look like a majestic plant as you pointed out, but in real life it is not. After flowering, shoots will appear and then they drop to the ground. Some become plants. Then it is time for the mother plant to die. It is very sad to see the mother plant dies soon after it flowered /reproduced.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8706566878384047279.post-10161560613896068972010-07-07T13:37:10.563-07:002010-07-07T13:37:10.563-07:00I had to google 'campomelic' because I did...I had to google 'campomelic' because I didn't know what it was. I'm sorry to hear about E and your painful ordeal. Having to bury your own child, twice, is beyond words to me.RoseBellehttps://www.blogger.com/profile/10152651219690178817noreply@blogger.comtag:blogger.com,1999:blog-8706566878384047279.post-36862831890860282602010-07-07T11:52:08.042-07:002010-07-07T11:52:08.042-07:00Wow, I've never seen a yucca this tall, it'...Wow, I've never seen a yucca this tall, it's amazing!! A few weeks ago, I did a post with lots of Yucca flowers, so pretty, but it was so short compared to this!! I would call this majestic. I have not heard of this disease you speak of, I will look it up. I am so terribly sorry to hear of this. It seems that both of you are like this strong and majestic plant.Ginny Hartzlerhttps://www.blogger.com/profile/09329131153403895625noreply@blogger.comtag:blogger.com,1999:blog-8706566878384047279.post-76202458109656599182010-07-07T09:49:07.861-07:002010-07-07T09:49:07.861-07:00Beautiful indeed. A nice tribute to E indeed.Beautiful indeed. A nice tribute to E indeed.Cherylhttps://www.blogger.com/profile/07360476402810561433noreply@blogger.comtag:blogger.com,1999:blog-8706566878384047279.post-59179782562124173932010-07-07T08:16:05.546-07:002010-07-07T08:16:05.546-07:00Very nice! I have never seen one before.Very nice! I have never seen one before.Loishttps://www.blogger.com/profile/10737705457021667861noreply@blogger.comtag:blogger.com,1999:blog-8706566878384047279.post-57755038107129715952010-07-07T07:15:46.892-07:002010-07-07T07:15:46.892-07:00May the Force Be With Her(E your friend..)May the Force Be With Her(E your friend..)Ah Ngaohttps://www.blogger.com/profile/00850002410473383697noreply@blogger.comtag:blogger.com,1999:blog-8706566878384047279.post-66277782932920782462010-07-07T05:51:57.935-07:002010-07-07T05:51:57.935-07:00I hope that E finds strength in your friendship. ...I hope that E finds strength in your friendship. I'm sorry to read that you and E have lost children to Campometic Dispiasa and that E now has cancer. My thoughts are with both of you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8706566878384047279.post-53681999725392474002010-07-07T03:20:21.592-07:002010-07-07T03:20:21.592-07:00Then, I would like to wish you as strong as the Yu...Then, I would like to wish you as strong as the Yucca too.rainfield61https://www.blogger.com/profile/01334864123466123667noreply@blogger.comtag:blogger.com,1999:blog-8706566878384047279.post-44128371596768090472010-07-07T03:19:16.141-07:002010-07-07T03:19:16.141-07:00that is beautiful. we dont get them round here. th...that is beautiful. we dont get them round here. the weather is too bad haha<br /><br />Tina from<br /><a href="http://www.mummy-diaries.com/" rel="nofollow">Mummy Diaries</a><br /><a href="http://www.gossipavenueblog.com/" rel="nofollow">Gossip Avenue</a><br /><a href="http://www.travelshackblog.com/" rel="nofollow">Travel Shack</a><br /><a href="http://www.gamefreakzweb.com/" rel="nofollow">Game FreakZ</a>Tinahttp://www.mummy-diaries.comnoreply@blogger.comtag:blogger.com,1999:blog-8706566878384047279.post-45127838354293684672010-07-07T00:07:48.303-07:002010-07-07T00:07:48.303-07:00Yucca flowers are so very impressive, so tall and ...Yucca flowers are so very impressive, so tall and quite pretty too.Glennishttps://www.blogger.com/profile/04660567773516760768noreply@blogger.com